Family Conference

The Australian Rett Syndrome Study invites you to attend the Australian Rett Syndrome Family Conference to be held on Friday May 25 and Saturday May 26 in Brisbane. All families, care workers, educators and health professionals are welcome.



Topics to be covered are:


Friday 25th May

  • Advances in the clinical understanding of Rett syndrome
  • What happens after diagnosis?
  • Scoliosis
  • Epilepsy
  • Mobility, recreation and bone health
  • Queensland Respite Initiative


Saturday 26th May

  • Overview of clinical management of Rett syndrome
  • Sleep
  • Communication
  • Gastrointestinal issues and nutrition
  • Movement disorders
  • Genetics

Sessions will commence at 9am both days (registration prior) and concluding around 5pm both days.


 Confirmed speakers include:


  • Dr Sakku Naidu - Kennedy Krieger Institute, Baltimore USA


  • Dr Teresa Temudo - Hospital de Santo António, Lisbon Portugal


  • Professor John Christodoulou - Children's Hospital Westmead, Sydney Australia


  • Dr Carolyn Ellaway - Children's Hospital Westmead, Sydney Australia


  • Clinical Associate Professor Helen Leonard - Telethon Institute for Child Health Research, Perth Australia




Daintree conference room

70 Kate Street Indooroopilly, Brisbane

Phone (07) 3871 4500


The conference venue is fully accessible for people with disabilities.

Free parking is available at the venue.



Families - free


Care- workers, educators and health professionals - $300 for two days, $150 for one day (including GST).

Payment options on the registration form.


Refunds - full refund of registration fee if cancelling prior to closing date of registration (Friday April 27 2012). Half refund if cancelling after April 27 and before Friday 11th May. No refund if cancelling after Friday 11th May unless in exceptional circumstances.



­Onsite accommodation at Riverglenn is available - details of accommodation options and pricing can be found at or by phoning (07)3871 4500.

Please book directly with Riverglenn.


Other nearby accommodation venues are:


Forest Lodge Apartments  


Toowong Central Motel      


Dinner Function

When: Friday 25th May 7pm


Where: Auditorium, Broncos League Club, 98 Fulcher Road, Red Hill QLD 4059


Full disability access


Menu: Buffet (main and dessert)


Cost: $50 per head for the meal. There will be a cash bar for drinks.


Payment by credit card can be made at Direct debit is also available; please email Katherine on for details.


Please pay by Friday 18th May so final numbers can be given to the venue, thank you.


Register Now

A flyer and registration form can be found here.

Please complete registration form electronically or manually.

All attendees will need to be registered prior to attending.

Email completed registration form to

Post to Australian Rett Syndrome Study, PO Box 855, West Perth 6872

Fax to (08) 9489 7700


Closing date for registrations is Friday April 27.



Please contact Katherine Bathgate (AussieRett study coordinator) on 9489 7774 or on if you have any queries.











How to register

View the flyer


Download the registration form


For more information please contact Katherine Bathgate (AussieRett study coordinator) on 9489 7774 or on


This conference would not be possible without the support of:

The Rett Syndrome Association of Australia


QLD logo


Focus Group for Families living in Queensland

 Road Map to Respite Plus


The Queensland Government's Department of Communities, Child Safety and Disability Services, through Disability Programs and Reform will be running a focus group at the conference where they will ask families to consider and provide their feedback on the following:


what they need from a respite service


how families think they would be involved in running a respite service


Background information and and information paper can be found here.


If you live in Queensland and would like to provide your ideas and feedback but are unable to attend the focus group please contact Chris Baggarley at about the questionnaire.